Thank you for the advice. MND does not get worse with exercise. It just gets harder to do. I was riding until a few months ago, but on smooth tracks with my son as escort. Now I don’t have physical strength to ride. Also, if I fall off, I don’t have enough strength to get back to my feet.That is so sad!
Have you thought about using it until you no longer can? Or does MND get worse with exercise?
eBay have just announced that they will no longer be selling emtbs. So Pinkbike Classifieds is a useful place to start. This website is another good place. One thing you can do to add to the appeal is to have a word with your local bike shop (ideally the place where you bought the bike, or at least knows and recognises you) to see if they would allow their shop to be used as the handover location. There are several benefits to this for you and for the buyer.
I have done this for the sale of my last bike and my grandson's bike. It was the LBS owner that suggested it. He didn't ask for or expect any money, but on a bike sale of £3100, I gave him £50 and similar when the other bike sold (he refused at first but I insisted). Both buyers told me that the fact the bike was being handed over at a bike shop was very comforting. I stepped out of the shop for a while so that the buyers could quiz the LBS guy. The handover took about 10 mins in each case.
Stay positive!
I really feel for you. I know that doesn't help, so I'm thinking that maybe as an EMTB community, we do something to help?? even if it is just raising some money to help your situation. I dunno, I would hope that we could all do something to help?Thank you for the advice. MND does not get worse with exercise. It just gets harder to do. I was riding until a few months ago, but on smooth tracks with my son as escort. Now I don’t have physical strength to ride. Also, if I fall off, I don’t have enough strength to get back to my feet.
MND is a degenerative disease, my strength has declined by about 50% in the past six months. My body weight has dropped from 98kg to 81kg, mainly due to the wasting of my muscle mass. MND takes no prisoners, it’s always terminal. Life expectancy is 6 months to 5 years. It’s also very rare and difficult to diagnose. End of life is caused by asphyxiation when your breathing muscles stop working. I have around 20 people supporting me through the NHS and loads of family helping me too. I’m currently taking one day at a time, as that’s about all you can do.
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